“The only disability in life is a bad attitude.” -Scott Hamilton

"The only disability in life is a bad attitude." - Scott Hamilton

Wednesday, November 30, 2011

Birthday/Thanksgiving

We celebrated Isabella's birthday which happened to fall on Thanksgiving this year. She was very excited! Grammy was here and after we ate lots of turkey, we all had Barbie ice cream cake.

Lily and Raymond were also excited about Isabella's birthday gifts. They both helped her open them. Lily was especially cute!





Later that evening I took Isabella to see the Muppet movie. It was really cute. She and I both liked it. She was happy to get to do something with just Mommy on her birthday. She told me this was her "most magical birthday ever!"

Until Next Time!

Lots of Love,


Thursday, November 24, 2011

Happy 5th Birthday Isabella!

Mommy, Daddy, Raymond and Lily love you SO much!!!


How special to have your birthday and Thanksgiving on the same day this year : )


Mommy & Daddy are thankful for you today and every day of the year!


XOXOXO

Wednesday, November 23, 2011

Last Week

Lily has been climbing up on anything that will stay still (and a few things that have moved out of the way). She is becoming such a big girl! She's going to be a year old before we know it! We headed down to the Ronald McDonald House the night before Raymond's surgery. Isabella stayed at home with Grandma.

This was Raymond the morning of his surgery at about 5:45am. He knew something was happening but couldn't figure out what.

Afterwards...


Raymond's surgery went very well. (He was SO happy to see Lily afterward!) His recovery has been rough for the poor little guy. Chris was sleeping in his room on a twin size air mattress because he was waking up in the middle of the night screaming. Everyday is getting a little better and today has been a week. Raymond is still having ups and downs. I'm sure he'll bounce back soon. He's tough!


I hope everyone has a WONDERFUL Thanksgiving!


Until Next Time!

Lots of Love,





Thursday, November 10, 2011

Tabs

This is an update for those of you who have been thoughtful enough to save your soda tabs for us to take to the Ronald McDonald House.


This is from the Ronald McDonald House Newsletter we get in the mail-

"Those aluminum tabs collections are really adding up to big numbers! In 2010, we averaged over $1,300 a month, and have raised over $166,800 to date from this project - that's 207 tons of aluminum!"

So a BIG thank you to everyone that has been helping us collect the aluminum tabs. See how even a small act of kindness can add up to such a wonderful outcome? Also, I just found out that they collect magazines/glossy paper too.





Until Next Time!

Lots of Love,


Tuesday, November 8, 2011

Sweet Maya!

Last week we went to visit my friend Ann in Delaware and meet her baby, Maya. She is a real cutie. Isabella was thrilled. She's a baby nut!



We bought her that cute little hat in this picture (and matching booties that you can't see).


It was really nice outside so we decided to go for a walk.



Raymond LOVES Isabella!



On Saturday we went to see the Macungie Minstrelaires with Grammy and Aunt Theresa. It was a show to benefit the Eastern Pennsylvania Down Syndrome Center. Raymond had a good time movin' and groovin' to the music!



It was good it was dark in there because Lily wanted nurse almost the entire time! When she wasn't eating she was trying to get Aunt Theresa.



Raymond and Jessica



On Monday we went for Raymond's anesthesia consultation for his surgery next week. After three hours, we got the green light. So lets hope Raymond stays healthy between now and then. Later this week he has a cardiology appointment and GI appointment. I'll let you know how those go.

Until Next Time!



Lots of Love,

Thursday, November 3, 2011

This Really Irks Me!

Thank you to everyone for hanging in with me for the 31 for 21 Campaign! I'm sure I will still be posting pretty often with the holidays and all of Raymond's procedures just around the corner. Speaking of procedures, I have a grip. Yep. Sorry, but I need to talk about this.

Anyone who has a child who's in the hospital frequently gets pretty used to the routine. We are used to seeing certain things and have come accustom to the "normal" things that go on there. One "normal" thing that drives me crazy, I mean, REALLY CRAZY, is all the waste. There is SO much wasted at hospitals that could benefit so many people.


For example, diapers. While Raymond was in the hospital this last time, the surgeons wanted to make sure Raymond's stomach was completely empty. So the nurse hooked up Raymond's extension tube and put a preemie diaper on the end of it to catch whatever drained out. She used one preemie diaper. That pack of diaper's, missing one, now gets thrown away. That is crazy. Think of all the people and organizations that could use these diapers. Someone should do something about this. I think it is so ridiculous. (Just as an FYI, I took the pack of diapers for Isabella to use with her baby dolls and stuffed animals.)


Also, at St. Christopher's Hospital for Children in Philadelphia, all of the baby blankets used in the NICU or anywhere in the hospital, get thrown away! They do not have a laundry service for them. The hospital only washes sheets, pillow cases and gowns. There are tons of shelters, basically right outside their doors, that could use them. So many single mothers or entire families at these facilities could benefit from the donation of these blankets (and diapers). There is always a need for these things, especially at this time of the year. It kills me.


When Raymond was in the NICU at St. Chris, he was given a Boppy pillow. When he was transferred back to St. Lukes, the nurses forgot to put it in the ambulance. Guess what? Yep. It was thrown away. Now I understand that some children and infants have illnesses that you wouldn't want to donate these items. But for the kids who were just born a little too early or a young child with a broken arm, a little one getting a simple procedure done, their items should be able to be donated. Every time we went back to St. Chris' NICU, Raymond got another Boppy Pillow, even though we told them we didn't want it. We already had two. So either we took the pillow, which was still sealed in the original package, or it got thrown away. We donated three Boppy pillows to the Ronald McDonald House during that time. But can you imagine throwing them away???


Basically, if it's in the patients room, opened or unopened, and the patient doesn't take it, it gets thrown away. "It's" being diaper's, blankets, formula, misc. medical supplies & so many other things. I know people personally who fight everyday with their child's insurance company to get the items that these hospitals are throwing away. Doesn't that just make you sick?


I know there are a lot of liability issues or whatever, but think of all the stuff getting thrown away that so many people, especially in this economy, would be grateful for. It's just something that bothers me so much. I'm a busy person, but I'm seriously going to look into this. Maybe there is something I can do at Hershey Medical Center since that's where Raymond gets his medical care. There is a Ronald McDonald House across the street for heaven's sake! They would be thrilled to have those items. I'll let you know what I can figure out.


Until Next Time!


Lots of Love,


Tuesday, November 1, 2011

Trick-or-Treat

Here are a few more costume shots from Halloween. We went trick-or-treating for about an hour. It was pretty chilly.


Before...

After...


Raymond had a good time. He especially liked all the doggies he saw trick-or-treating.


Until Next Time!

Lots of Love,